Updates

An update on how Marlowe's week has been.  She has continued her dialysis at small volumes and has been getting rid of excess fluids.  For two days this week, her total fluids out were higher than her fluids in.  This is a big deal for Marlowe since her fluids have to be so closely monitored for fluid overload.  We can visibly notice that her face and limbs are retaining less fluid.  The dialysis volumes are lower than they were last week, but the doctors are taking it slow and watching the catheter closely.  Since her dialysis is working, her feeding had increased.  Her diet has to be restricted and most of her nutrients are through an IV.  As the feeds increased, she wasn't fully digesting the milk so she has been off and on milk all week.  This is an ongoing goal for her to tolerate more feeding and rely less on the IV.

Marlowe's becoming more alert and with more time awake she has been spending more time out of bed.  She has finished her first book club book with Mom, enjoys Dad's goofy songs, and cuddle time with her grandmas. Thanks for all of the thoughtful messages and cards, it helps us to have everyone's encouragement...plus it makes her room look pretty.