Field Trip

Marlowe's goal last week was to increase her feeds so that she would rely less on her IV nutrition.  As of Friday, she was doing brilliantly.  She was steadily increasing her feeding, and was completely off her IV.   She started getting some of her meds through her feeds, with the goal of decreasing her reliance on IV medication.  Saturday morning she began to vomit, and has since been back to only getting nutrition through her IV.  The doctors felt they needed to do some additional testing to determine what was causing the intolerance.  Marlowe has only left her room three times in her life.   Typically, anyone who needs to examine or test her will have to come to her.  It was a long day and night for her, and 24 hours later we're still waiting for answers.